The countdown - ZERO days!

Sisters have the best hands to hold!

 Today is the day for which we have been counting down and we are now on ZERO days left - that is days left til she can really have fun again.  It was exactly six weeks ago today that our little Lia spent 9.5 hours in the operating room having her heart repaired through the Fontan surgery for tricuspid atresia, hypoplastic right heart syndrome.  This was her second surgery, with the first, the Glenn, done at 18 months old in China without a mommy or daddy by her side.  We are so glad we were able to love her through this surgery every step of the way.

This time the doctors had to get through quite a bit of scar tissue before even beginning her surgery.  She spent four days in PICU and nine days on the cardiac wing in recovery.  Her little heart was on the heart/lung bypass maching for 158 minutes and she lost a large amount of blood during surgery.

Today, though, only six weeks later,  she is so excited that she gets to swing and slide and ride her bike beginning tomorrow.  Everyday, for the past week we have counted down the days and today was ZERO!  YEA!  God is good and He is a miracle working God! 

Tonight, though, she really gave me a scare and I ask that you please pray that everything is ok.  I will be calling the doctor in the morning to hopefully get some answers.  This past Saturday night, Lia began crying with a terrible headache,  out of the blue while we were driving.  We got her some motrin and it went away pretty quickly.  I assumed it was just allergies since she seemed to be a little stuffy and was outside much of the day.  She has been fine since then until today.  This morning shc woke up at 4 am and just didn't feel well.  I gave her tylenol and she was fine all day.  She went to school and played all day without any problems.  Tonight, while bathing her, she began screaming with a terrible headache again.  I  called the hospital to ask if there was something that I needed to be aware of.  The nurse didn't know of anything, told me to give her motrin and to bring her in if it didn't stop within an hour.  I was prepared to head to the hospital tonight, but she fell asleep and is sleeping soundly now.  This is not anything that we were warned of and after all she has been through,  it breaks my heart to watch her holding her little head and crying in such pain.

Please join us in praying that everything is ok and she can enjoy really playing tomorrow and celebrating a wonderful recovery with many of the things she loves!

 

Just a few pictures I have taken the past week with my school camera, 

since my other is still out of commission.  I just love these, 

but didn't get to post them 

since I had misplaced my card reader.  

First Sunday back to Sunday School to play with her friend, Allie

In awe of the fireworks we saw on Saturday.

Mommy's sunglasses are better for this Eagle fan!

Need some advice

Can someone please tell me what happened to the alignment on my most recent post?  I can NOT figure out how to change the way it appeared.  I did not do anything different.  Thanks!

Refrigerator

If God had a refrigerator, your picture would be on
it. If He had a wallet, Your photo would be in it. He 
sends you flowers every spring and a sunrise every
morning.  Whenever you want to talk, He'll listen.
He could live anywhere in the universe, and He chose 
your heart. What about the Christmas gift He sent you 

in Bethlehem; not to mention that Friday at Calvary.

Face it, He's crazy about

 you!

What a joy it is to know that He is 

crazy about me! 

I watched the joy in Lia's face tonight  as I asked her if we could 

hang her picture on the refrigerator.  You see, I wonder how many times 

she has ever had someone think she was special enough to hang her artwork

 for all to see.  Can you imagine what it  would be like to live in a home with about 

90 other children all clamoring for attention? 

Unfortunately, many children will never experience the joy of pulling 

that new piece of scotch tape and taping that picture in just the perfect place, 

making certain that it had enough pieces of tape so it wouldn't fall.  

Just last week I was looking on the Love Without Boundaries 

 website at the picture of a precious little girl that was Lia's playmate 

just a few months ago. 

"Rochelle" is still sitting and waiting for a family, hoping that 

someday she too will get to put her picture somewhere special. 

Wondering if she will ever get adopted, because, you see, she has a 

special need.  As I looked intently at her picture, I noticed the sweet 

little girl in the background and the sad look upon her face. 

It only took a second for me to realize that sad little girl in the background

 is now the one that I kiss to sleep every night and tell her how beautiful her 

pictures are everyday.  How I wish I could have held her then and been there to

 comfort her, but God's timing is perfect and May 31, 2010 was the date He had 

planned for our lives to meet. 

What a difference it makes to know you are special!  Please join me 

in praying for little "Rochelle" and maybe even ask God if she could be 

your little girl. 

From the sounds of her profile, I bet she has some beautiful artwork

to decorate your refrigerator!